Center for Transition to Adult Health Care for Youth with Disabilities Launches New Website

December 11, 2023

New Website to Help Young People with I/DD Transition to Adult Health Care

The Center for Transition to Adult Health Care for Youth with Disabilities, a national resource center funded by ACL’s Administration on Disabilities (AoD), has launched a new website to help young people with intellectual and developmental disabilities (I/DD) direct their own transition to the adult health care system.

Developed for and by youth with I/DD, the site has a variety of both person-centered and culturally competent tools and resources to help support youth, their families, and health care professionals through this important transition.

Resources on the website are designed to give youth more choice and control throughout their health care transition. Examples include helping youth gain an understanding of their legal rights and responsibilities in a health care setting and supporting them to lead appointments and at-home health care routines. The website’s data section shows that only 14% of youth with I/DD receive health care transition preparation and guidance from their doctor.

The site also includes resources developed by Center partners, including Family Voices, Got Transition, SPAN Parent Advocacy Network, and two AoD-funded University Centers of Excellence in Development Disabilities (UCEDDs): the Institute for Human Development at University of Missouri-Kansas City and the Waisman Center at the University of Wisconsin-Madison. Both of these UCEDDs have done extensive work in the field of health care transitions for youth with I/DD.

The Center for Transition to Adult Health Care for Youth with Disabilities was established through a five-year cooperative agreement awarded in September 2021. The project is funded under the Projects of National Significance within the Developmental Disabilities Assistance and Bill of Rights Act.

For additional information, contact Dana.Fink@acl.hhs.gov

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Thank You for Making Active for Autism 2025 a Huge Success!

May 13, 2025

We’re still smiling from Active for Autism 2025 — and it’s all thanks to YOU! Whether you walked, ran, sponsored, volunteered, donated, or simply cheered us on, you helped make this year’s event one of the most impactful yet. Thanks to your incredible support, we raised $ 87,153.43 (and counting!) , marking a 24 % increase from last year. Every dollar goes directly toward programs and services that inform, support, and connect families of individuals with autism and other developmental disabilities across our community. The energy on event day was unmatched — from families walking hand-in-hand, to kids enjoying the Fun Fest, to teams showing up in vibrant shirts and big smiles. Your presence showed the true power of community. We are beyond grateful to our: Participants who showed up with passion and purpose Sponsors who helped make the event possible Vendors who brought fun and resources to the day Donors who gave generously Volunteers who offered their time, heart, and hands A Special Thank You to Our Co-Sponsors We are especially thankful for our co-sponsors whose generous support elevated this event: Enbridge, 100.7 The Tiger, and Ochsner’s Children’s . Your partnership helped amplify our mission and impact. Thank you for standing with us! Thank You to All Our Sponsors We are grateful to all of our sponsors who make this event possible year after year. Your generosity directly supports families and individuals in our community. 2025 Active for Autism Sponsors: Presenting Platinum Sponsors: Enbridge, 100.7 The Tiger, and Ochsner Children’s Hospital Gold Sponsors: REV, The Nirel Group Foundation Silver Sponsors: Olivier Group, Behavior Intervention Group, Louisiana Blue, Hood Container Corporation, and Mayor-President Sid Edwards Bronze Sponsors: BREC, Associates in Pediatric Dentistry, Wampold Companies, ACE Enterprises Inc., Ascent Behavior Therapy Center, Williams Photography, and Maughan Law Firm Patron Sponsors: BearCom of Baton Rouge, Gulf South Autism Center, The Baton Rouge Clinic AMC, Our Lady of the Lake Children’s Hospital, Mercy Autism Center, Kidder & Schultz CPA LLC Governmental Supporters : State Senator Regina Barrow, Iberville Parish, and West Baton Rouge Parish Together, we’re making real change — not just during this event, but every day of the year. 📅 Mark your calendar : Active for Autism 2026 will take place on Saturday, April 25, 2026 . We can’t wait to celebrate and walk alongside you again. From all of us at Families Helping Families of Greater Baton Rouge: Thank you for helping us keep families informed, supported, and connected. We are families helping families. That’s what we do. That’s who we are.

Families Helping Families of Greater Baton Rouge Hosts Annual Active for Autism 5K Run/Walk & Family Fun Fest on April 26, 2025

By Chanell Thomas • April 2, 2025